Raffaele, 29, living with Treacher Collins Syndrome

The Treacher Collins syndrome is a rare genetic disorder of the ears, eyes, chin, face or the neck. This can a heavy disability and has an impact on your social life.

Sphera member VD News profiled Raffaele Capperi, 29, who was born this disease. In a very humane and candid profile, he tells us how his life and upbringing was shaped with this malformation. From bullying in schools to his path of self-appreciation by using social media, Raffaele’s story is also a lesson that every disability can be overcome.


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